In the balance - HIV and the Law

In the balance - HIV and the law
In the balance - HIV and the law
Reflections on the Epidemic - World AIDS Day 2012 series
A series of articles by guest writers for World AIDS Day

Part of AVERT's World AIDS Day 2012 campaign, ‘Reflections on the Epidemic’ are a series of articles by guest writers. Our guest writers range from global leaders, writers, experts, activists, physicians and people personally affected by HIV and AIDS; and they represent various countries, experiences and backgrounds from all over the world. We are grateful to all our guest writers for their effort and the diverse and insightful viewpoints that they contributed to the world’s response to HIV and AIDS.

We will be re-featuring these articles over the next few weeks on a weekly basis. Browse through this week’s featured articles, and see the full list below.

Next year marks the 25th anniversary of World AIDS Day.  Time enough, then, for a few traditions to take hold—among them, a look back at 12 months of progress, and pitfalls in the fight against HIV. When it comes to the law, there were plenty of both in 2012.

Two years ago, the Global Commission on HIV and the Law1 was set up by agencies of the United Nations to consider how legislation on the books, judgement in the courts and law enforcement on the streets is shaping the global response to HIV. Twenty-four months, and more than 700 personal testimonials and expert submissions later—the Commission published its results and recommendations in July.
 
Our report makes for sober reading, informed as it is by those on the sharp end of making and breaking HIV-related laws in more than 140 countries. We heard from people living with HIV who are deprived of the medicines they need because of intellectual property laws that put prices out of reach. Men-who-have-sex-with-men and female sex workers told us their harrowing experiences of arbitrary arrest and abuse by police; people who inject drugs spoke of their time in detention, denied clean needles or substitution therapy to help them reduce the harms associated with their habit. Migrant workers expelled from countries with laws which ban the entry of, or deport, foreigners with HIV, and HIV-positive citizens denied healthcare, schooling, employment, or housing because of stigma and discrimination—these are just some of the people for whom protective laws, even if they exist on paper, offer little relief in practice.

This myriad of laws, across multiple legal systems, has one thing in common: by punishing those who have HIV, or the practices that may leave them vulnerable to infection, such laws simply serve to drive people further from disclosure, testing and treatment—fostering, not fighting, the global epidemic.

It is time to say, “No more.” Just as we need new science to help fight the viral epidemic, we need new thinking to combat an epidemic of bad laws that is undermining the precious gains made in HIV awareness, prevention and treatment over the past thirty years. Our Commission put forth a number of prescriptions:

Deliberate and malicious transmission of HIV is best prosecuted by existing laws on assault, homicide or bodily harm, rather than the special HIV criminal statutes that have sprung up in recent years and that sweep up those — pregnant women among them — to  whom they should never apply. Existing intellectual property laws require a complete overhaul when it comes to pharmaceuticals, to ensure that the interests of public health are balanced against incentives for innovation, and that the best new medicines for HIV are available to all. Laws that criminalize sex work, drug use, same-sex relations or transgender identity do little to change behaviour, aside from discouraging people most at risk of infection from taking measures to protect themselves, and their communities, from HIV. Laws against gender-based violence and towards the economic empowerment of women are badly needed, and need to be enforced, to reduce women's vulnerability to HIV.

“by punishing those who have HIV, or the practices that may leave them vulnerable to infection, such laws simply serve to drive people further from disclosure, testing and treatment”

A number of countries are already taking steps in the right direction. This year alone, legal challenges and court decisions in Canada have opened the way to more equitable treatment of sex workers. Nasarawa became the latest Nigerian state to pass anti-HIV-discrimination legislation. Indonesia started using flexibilities enshrined in international trade agreements to issue compulsory licenses on a number of antiretroviral drugs, in effort to increase affordability and access. These are just a few examples of recent advances, but there have been plenty of setbacks too. Homophobic legislation and legal practices persist in many countries, ill-conceived laws on HIV disclosure and transmission continue their trail of collateral damage—the list goes on.

As a member of the Global Commission on HIV and the Law, I would like to think that 2012 represents a turning point in how we look at the impact of law on the global epidemic. Indeed, a recent commitment by Commonwealth Foreign Ministers—whose countries account for almost a third of the world’s population and some of the most repressive legislation on the planet when it comes to HIV—to work towards repealing discriminatory laws that hamper their response to the epidemic, sets an encouraging course for the years to come.  But the reality is that change takes time, particularly when laws, and law enforcement, are influenced by conservative currents and selective interpretations of religion and tradition. Nonetheless, my experience on the Commission gives me hope that as more evidence of the impact of laws comes to light, and more voices are brought to calls for reform, the tide is slowly shifting towards a more tolerant, pragmatic, and just legal environment for all whose lives are touched by HIV.

Shereen El Feki is a writer, broadcaster, and academic who started her professional life in medical science before going on to become an award-winning journalist with The Economist and a presenter with Al Jazeera English. She is vice-chair of the UN's Global Commission on HIV and the Law, as well as a TED Global Fellow. Her first book, Sex and the Citadel: Intimate Life in the Changing Arab World, will be published by Random House in March. Shereen writes for a number of publications, among them The Huffington Post. With roots in Egypt and Wales, Shereen grew up in Canada; she now divides her time between London and Cairo.

For further information on HIV and the law, see AVERT's page on Criminal Transmission.

Image copyright: Mike Reys

Featured writers
In pursuit of a cure - Kevin Frost Ending paediatric AIDS: How we need to go beyond the clinical intervention when addressing children’s needs - Kate Iorpenda AIDS - it's not over - Dr Peter Piot The future of antiretroviral treatment - Dr Gottfried Hirnschall

All writers

Meeting the challenge of stigma in Iran
Dr Kamiar Alaei & Dr Arash Alaei
Physicians, winners of Elizabeth Taylor Award at AIDS 2012

Words are not enough: Where is the genuine support for an AIDS-free generation?
Georgia Arnold
Executive Director of the MTV Staying Alive Foundation

Narrow escape
Mercy Banda
Student, Malawi

Going beyond the silver bullet approach
Dr Alvaro Bermejo
Executive Director of the International HIV/AIDS Alliance

A new generation of awareness
AVERT
International HIV and AIDS Charity

Mothers at the forefront of change
Dr Mitchell Besser
Founder and Medical Director of mothers2mothers

A few simple actions against AIDS
Hydeia Broadbent
International HIV/AIDS Activist & Humanitarian

The reality of beginning the end of AIDS
Deborah Dugan
Chief Executive Officer of (RED)

In the balance — HIV and the Law
Dr Shereen El Feki
Vice-chair of the Global Commission on HIV and the Law

Striving for an AIDS free generation of adolescents
Lorrie Fair
Head of Programs, Charlize Theron Africa Outreach Project

A broken unity: An American reflection on the epidemic
Mary Fisher
Political activist, artist and author

Universal access for people who use drugs: Not just a pipe dream
Ann Fordham
Executive Director of the International Drug Policy Consortium (IDPC)

In pursuit of a cure
Kevin Frost
Chief Executive Officer, amfAR

The future of antiretroviral treatment
Dr Gottfried Hirnschall
Director of the HIV Department of WHO

Ending paediatric AIDS
Kate Iorpenda
Senior Advisor of Children and Impact Mitigation at the International HIV/AIDS Alliance

A future of possibilities
Gery Keszler
Chief Executive Officer of Life Ball

Riding the waves of HIV
Greg Louganis
Olympic Diver, Actor, Speaker and Activist

The Paediatric HIV response in the context of AIDS optimism
Dr Daniella Mark
Executive Director of Paediatric AIDS Treatment for Africa

HIV/AIDS Care begins at home
Dr Mosa Moshabela
Director of the Rural AIDS and Development Action Research (RADAR)

HIV/AIDS in Uganda: Myth to reality
Frank Mugisha
Executive Director of Sexual Minorities Uganda (SMUG)

Why beauty is a great weapon in the fight against HIV/AIDS
Ninette Murk
Founder and Creative Director of Designers Against AIDS and Beauty Without Irony

HIV Walk, unravels the epidemic
Catherine Murombedzi
Journalist who writes the column ‘HIV Walk’ in The Herald, Zimbabwe

The importance of Parliamentary voices in the AIDS response
Pamela Nash MP
Chair of the UK All Party Parliamentary Group on HIV and AIDS

Women breaking the stereotype
Kanya Ndaki
Editor of IRIN's HIV/AIDS news service PlusNews

Resources for a rights based approach to address the HIV/AIDS pandemic
David Odali
Executive Director of the Umunthu Foundation, partner of AVERT

AIDS - It’s not over
Professor Peter Piot
Director of London School of Hygiene and Tropical Medicine

Backing the community response
Midnight Poonkasetwattana
Executive Director of the Asia Pacific Coalition on Male Sexual Health (APCOM)

Gogo-getters become elders
Tony Schnell
Director of Sisonke, partner of AVERT

Getting to zero
Michel Sidibé
Executive Director of the Joint United Nations Programme on HIV/AIDS (UNAIDS)

The search for common humanity at the heart of the AIDS response
Ben Simms
Director of the UK Consortium on AIDS and International Development

AIDS is still hot in India
Dr Kutikuppala Surya Rao
Eminent HIV physician in India

Why involve women with HIV?
Dr Alice Welbourn
Founding Director of the Salamander Trust and activist

All opinions expressed in 'Reflections on the Epidemic' do not necessarily represent those of AVERT.

References back to top

  1. Global Commission on HIV and the Law (2012) 'About''